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Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

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« A letter from the White House! | Main | August is SMA Awareness Month! »
Wednesday
Aug142013

August is Declared Spinal Muscular Atrophy Awareness Month in the state of Michigan!

 

Michigan is going to be joining the other states - declaring August as “Spinal Muscular Atrophy Awareness Month!”  This marks our fourth year of being involved in getting recognition for all the families dealing with SMA (past and present).  With the help of our State Senator Tonya Schuitmaker we were able to get the Proclamation again this year!  Our State Representative Aric Nesbitt will introduce the resolution on the House floor for us too!  The State Senate will pass the resolution in the last week of August and the House will pass the resolution in the first week of September.  We are so excited!!
We will be sure to post pictures once we get the resolutions!

Michigan is going to be joining the other states - declaring August as “Spinal Muscular Atrophy Awareness Month!”  This marks our fourth year of being involved in getting recognition for all the families dealing with SMA (past and present).  With the help of our State Senator Tonya Schuitmaker we were able to get the Proclamation again this year!  Our State Representative Aric Nesbitt will introduce the resolution on the House floor for us too!  The State Senate will pass the resolution in the last week of August and the House will pass the resolution in the first week of September.  We are so excited!!We will be sure to post pictures once we get the resolutions!

 

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  • Response
    Our life with SMA - Blog - August is Declared Spinal Muscular Atrophy Awareness Month in the state of Michigan!
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    Our life with SMA - Blog - August is Declared Spinal Muscular Atrophy Awareness Month in the state of Michigan!
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    Response: Anthony Alles
    Our life with SMA - Blog - August is Declared Spinal Muscular Atrophy Awareness Month in the state of Michigan!

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